FMDSA 2025

FMDSA 2025

FMDSA 2025
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FMDSA 2025

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Welcome to the Annual FMDSA Patient Conference!

We are thrilled to introduce you to a special virtual event that was dedicated to empowering individuals and families affected by fibromuscular dysplasia (FMD) with knowledge and hope. Whether you’re newly diagnosed or have been living with FMD for years, this event is designed with you in mind.

Each year, we bring together world-renowned specialists who are leading the way in FMD research and treatment. This conference is one of the most valuable opportunities to stay informed about the latest advances in FMD diagnosis, management, and care. You can watch the live session recordings or pre-recordings, and hear directly from medical experts current insights and updates about the disease.

Registrations are still open

In case you haven't registered for the event yet, don't worry, you can do so today. Just click the button below.


Live Presentations

  • Dr. Jeffrey Olin – Mount Sinai, New York
  • Dr. Heather Gornik – University Hospitals Harrington Heart & Vascular Institute, Cleveland, Ohio
  • Dr. Daniella Kadian–Dodov – Mount Sinai, New York
  • Dr. James Froehlich – University of Michigan, Ann Arbor, Michigan
  • Jean Marino, CNP – University Hospitals, Cleveland, Ohio
  • Dr. Santhi Ganesh – University of Michigan, Ann Arbor, Michigan
  • Dr. Jason Kovacic – Victor Chang Cardiac Research Institute, Sydney, Australia
  • Dr. Esther Kim – Atrium Health, Sanger Heart & Vascular Institute, Charlotte, North Carolina
  • Dr. Natalia Fendrikova Mahlay – Cleveland Clinic Main Campus
  • Pamela Mace, RN – FMDSA

Topics

  • What is Fibromuscular Dysplasia?
  • Treating cerebrovascular FMD, including aneurysms and dissections.
  • Prevention and management of headaches: What is new?
  • Update on Menopause and Hormone Therapy.
  • Are FMD and SCAD the same disease?
  • Update from the North American Registry: Current State and Future Plans.
  • Update on SCAD and the iSCAD registry.
  • FMD Research Recap: recent work from national meetings.
  • Genetics and FMD.
  • Living with FMD.

On-Demand Presentations

  • Dr. Alexandre Persu – Cliniques Universitaires Saint-Luc, Brussels, Belgium. "Update on the European FMD Registry."
  • Dr. Nabila Bouatia–Naji – DR1 Inserm Paris Cardiovascular Research Center. "La dysplasie fibromusculaire dans une boîte de petri?"
  • Dr. Constantina Chrysochou – Salford Royal Hospital and School of Medical Sciences, University of Manchester. "FMD Initiatives in the UK."
  • Dr. Deborah Reed - University Hospitals, Cleveland, Ohio. "Headache: Diagnosis & Treatment."
  • Shivani Lam – Emory University School of Medicine. "Impact of Cardiac Rehabilitation In Patients with Prior Spontaneous Coronary Artery Dissection."
  • Dr. Patricia Rodriguez-Lozano – University of Virginia. "Pregnancy-Associated Spontaneous Coronary Artery Dissection in the Antepartum Period: Navigating Clinical Uncertainties."
  • Emma Greenwood – Whooshers.com. "Pulsatile Tinnitus."
  • Becky Young, MSN, RN – University Hospitals, Cleveland, Ohio. Arteries 101: "How My Heart's “Plumbing” Works."
  • Lisa Shelanskas – EMSI Services. "Calling 911."
  • Cathlin Jamison – FMDSA. "European and International Patient Support Networks."
  • Pulkit Chaudhury, MD, FACC, FSVM, FACP, RPVI - Cleveland Clinic. "Utility of Large Language Models (Chat GPT) in Addressing Patient Questions on FMD."
  • Pamela Mace, RN - Fibromuscular Dysplasia Society of America. "Living with FMD."

Stay Connected:



Announcements

2 months ago

Thank you for joining us for FMDSA Annual Conference 2025

Dear all,

Thank you for joining us for the FMDSA Annual Conference 2025. This meeting would not be successful without you and we hope you had a productive and informative time.

Please see below for some post-conference information.

  • All of the live sessions have been recorded and are available for viewing on the Underline virtual platform.
  • The FMDSA 2025 Virtual Conference will stay open for all registered attendees through August 31, 2025. During this time, you will be able to watch all of the content asynchronously.
  • You can also view on-demand presentations from presenters who were unable to join us live.
  • Don't forget to check out our virtual posters and patient resources.
  • If you are an author and you see any information missing or would like to suggest edits, please contact us at fmdsa2025@underline.io.

To all speakers, moderators, attendees; huge thanks for joining us and making it all possible 🧡

2 months ago

Copyright Disclaimer ©

Copyright @ FMDSA 2025. Any illegal reproduction of this content will result in immediate legal action. All Rights Reserved.

Please note: If you post questions in the Q&A box, your name will be publicly available to all visitors to the virtual platform.

3 months ago

And just like that, FMDSA 2025 is over... but great memories remain

Thanks for joining us for the FMDSA 2025 Virtual Conference!

The pre-recorded presentations and virtual posters are available on-demand during next six months, so you can view them at any time.

Also, don't forget to check out the patient resources.

If you missed any of the live sessions, the recordings will be available to view a few days after the conference.

To all speakers, moderators, attendees; huge thanks for joining us and making it all possible 🧡

3 months ago

Patient Resources

As with many under-diagnosed diseases, getting the care and support you need can be challenging. In order to receive the best care possible, it’s vital that you become your own healthcare advocate. The objective of this section is to help you find the resources and information you will need to support your efforts.

➡️ Click here to find out more ⬅️

3 months ago

Watch the pre-recorded presentations! 📼🎥

You can now view on-demand presentations from presenters who were unable to join us live. Just click on a presentation thumbnail below and view at your convenience.

View On-Demand Presentations

3 months ago

Welcome! 👋🙌

Great talks, networking, and good vibes today. Don’t miss out!

To see all content, you need to log in to the Underline platform first.

Still not attending? You can register here.

#strongertogether

3 months ago

Event site is open! 🎉

This virtual conference site is open to the public and you should have by now received an email notification about it, including your login credentials. Please check your spam/promotional inbox too.

Live sessions begin at 9:00 am ET on Saturday, May 3rd.

Please note that presentations and information, are still being added onto the platform before the live presentations begin, and we thank you for your understanding.

Underline Science Team fmdsa2025@underline.io

3 months ago

Get Involved

  • Become a Member

Through good times or bad , we the members of the FMDSA are here for you. The organization provides you with valuable resources and lends support in dealing with the disease, Fibromuscular Dysplasia.

To become a member of FMDSA or to make a general donation click the button below and choose your membership level. Membership is for a one-year period and must be renewed annually.

  • Donate

We need your financial support to enable us to continue to fund research through the US Registry for Fibromuscular Dysplasia. FMDSA, solely funds the Registry through donations made by our members and patient community. Funds are also required to raise awareness, attend conferences to educate medical professionals and to provide patient support. We are truly making a difference in people's lives... Even the smallest donations add up and allow us to continue our work.

  • Volunteer

Whether you have been personally affected by FMD, want to give back to the community, or looking for career experience, we would love to hear from you.

If you or someone you know is interested in volunteering for FMDSA, please download the FMDSA Volunteer Application and email our Admin at admin@fmdsa.org

Currently, we are in need of volunteers to help with social media, writing for our webblast, marketing, development, and fundraising. Please consider getting involved!

The FMDSA needs heroes! You can help make a big difference in furthering research, spreading awareness, educating health care professionals, and offering patient support.

In order to continue with our efforts, we need to raise funds. If you decide to hold an event, the FMDSA is willing and able to help you plan and organize it. It all helps!

Thank you!

4 months ago

Welcome to FMDSA 2025!

Here you'll find all the announcements and changes regarding FMDSA 2025 Conference.

Stay tuned!